Beautiful Bo

Rally for Rare / 2025 A-Team

"Hi! I'm Bo I was born on July 24th, 2024 with GCM and NCM will you help me reach my goal to raise awareness, support, and research funds for others like me. "

  • $3,753

    Raised

  • $5,000

    Goal

  • 35

    Supporters

  • 0

    Days Remaining

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About


Our Daughter Bo was born with a rare disease called Giant Congenital melanocytic nevi ( GCM ) a very large birthmark that covers her entire back. The day she was born We were referred to Boston Children’s Hospital, where we were told that with these types of birthmarks runs a 2% chance of them growing on the inside of the body on the spinal-cord and the brain. 

After multiple ultrasounds, and MRIs at three months old we discovered that Bo does have Neurological Melanosis Nevi ( NCM ).  A phone call that I will truly never forget. A call that brought a very real and scary risk of Melanoma, Seizers, Brain Cancer and a-lot more unknown with no known treatments except monitoring.

Please help us raise awareness and get one step closer to finding answers and providing essential education and support for those living with CMN, NCM, and related conditions this rare disease day.

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