Emric

Rally for Rare / 2025 A-Team

"Emric was born with CMN on his entire left leg , will you help me reach my goal of $1500 to raise awareness, support, and research funds for others like me. "

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  • $5,000

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About

Our son Emric was born with a rare skin condition called Giant Congenital melanocytic nevi ( GCMN ) with multiple smaller nevi & satellites. These terms represent pigmented birthmarks that are present at birth, cover a substantial part of the body & grow with the person.  Large congenital nevi are rare and occur approximately once in every 20,000 births. Giant congenital nevi are thought to occur approximately once in every 500,000 births.

 Because it is a rare condition, most doctors have never had experience with congenital melanocytic nevi. Misinformation is often more common than not, and many new parents are given an incorrect and often frightening prognosis, or simply not given information at all. Emrics story started in a very similar way with multiple misdiagnoses & an extensive search for answers from a limited pool of healthcare professionals.  Trusted specialists have helped guide GCMN related events, including NCM, MRIs & the continuous skin abstraction that is unavoidable with a leg nevus. 

 Emric has overcome a number of challenges due to his GCMN and we continue to learn through life experiences, organizations such as Nevus Outreach & subject matter experts through Boston Childrens Hospital.  These are the types of resources that make a difference.  This is the type of education we want to help spread.  This is the type of research we want to help fund. 

 Please help us raise awareness and get one step closer to finding answers and providing essential education and support for those living with CMN, NCM, and related conditions this rare disease day. To learn more about nevus: Home | Nevus Outreach

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