Hope for Weston

Kimberly Phelps / 2026 Conference Fundraise Your Way

We are dedicated to creating a brighter future for those affected by Congenital Melanocytic Nevi and Neurocutaneous Melanosis. Inspired by Weston’s strength, our mission is to fund critical research, support educational opportunities such as the 2026 CMN conference, and empower families with the resources and community they need to thrive!

  • $654

    Raised

  • $10,000

    Goal

  • 11

    Supporters

  • 257

    Days Remaining

Recent Transactions

About Hope for Weston

Weston was born in September 2022 with Congenital Melanocytic Nevi (CMN). At just three weeks old, an MRI confirmed 6 lesions in his brain consistent with NCM...a diagnosis that forever changed our lives. 
Despite this difficult start, Weston has continued to thrive. With the support of countless specialists and therapies, he is meeting milestones and lighting up every room with his smile. His genetic testing revealed a rare mosaic mutation, AGAP3-BRAF, making research and future therapies critical for his health and others like him.
In 2023, our family attended the Nevus Outreach Conference and experienced the life-changing support of connecting with other CMN families. It showed us the power of awareness, research, and community in shaping a brighter future. 
Now, as Weston celebrates his 3rd birthday, we are raising funds to: Support future CMN/NCM research, provide resources and support to others walking this journey, and help make the 2026 CMN conference possible for our family.
Weston’s story is one of resilience, hope, and community. With your help, we can continue to fight for answers, support families, and build a better future for all children with CMN and NCM!