Weston’s diagnosis brought our family into a world we had never known before and connected us with individuals and families who truly understood what we were experiencing. Despite the uncertainty of those early days, Weston has continued to thrive, and his journey completely changed the direction of mine. 

When I couldn't control what CMN and NCM might mean for Weston’s future, I decided to focus on something I could influence: helping create a better future for him and others affected by CMN and NCM. That led me to Nevus Outreach, first through volunteering and advocacy and now as the organization’s Community Liaison. Today, I have the privilege of connecting with families, sharing resources, building relationships, raising awareness, and helping others find the support they need throughout their own journeys. 

What started with Weston has become such an important part of our family’s life and has given me the opportunity to give back to a community that has given so much to us. 

Raising CMN awareness is important to me because I want to help shape the world Weston grows up in. I want him and others with CMN to be understood, accepted, and supported, and to know they never have to hide who they are or change themselves to fit in. I want Weston to walk into every room with confidence, embrace what makes him uniquely Weston, and know that his CMN is part of his story—but it will never define who he is or what he is capable of becoming.