CMN Ambassador - Weston

Nevus Outreach / 2026 A-Team

Let's Rally for Rare!! Join us in raising funds for Nevus Outreach to support individuals living with CMN, NCM, related conditions and their families. Together, we can make a difference!
  • $72

    Raised

  • $500

    Goal

  • 2

    Supporters

  • 0

    Days Remaining

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About CMN Ambassador - Weston

Weston was born in September 2022 with CMN. 21 days later, an almost 4 hour MRI reported that our sweet little newborn had a rare, secondary rare condition seen in a small percentage of children with CMN, called Neurocutaneous Melanocytosis (NCM). We were devastated and desperately wanted answers of how this affected his future. 

We stumbled upon Nevus Outreach, an online community that helps support families like mine, going through a CMN/NCM diagnosis. We found belonging, community and hope as we stepped into the unknowns of this rare disease journey. I felt empowered to make sure this nonprofit is around for future families facing the same daunting diagnosis. I want to turn around and give the next generation of nevus families hope, and a promise to always be there...so that no one walks this path alone.

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