CMN Ambassador - Olivia Grace
Nevus Outreach / 2026 A-Team
“More than a birthmark. More than a diagnosis. A child with extraordinary strength.”
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$577
Raised
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$1,000
Goal
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8
Supporters
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53
Days Remaining
Recent Transactions
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Beverley Chittenden
$78.00 / 8 days ago
Hoping and praying for a cure for CMN. God bless beautiful little Olivia and her lovely Mom ❤️
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Satoko Kaneko
$52.00 / 9 days ago
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Cassandra Fraser
$104.00 / 9 days ago
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Bryan Roper
$104.00 / 16 days ago
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Sandra Meyer
$52.00 / 18 days ago
I feel this is an extremely difficult diagnosis to come to terms with for the parents. No one likes to see the beloved children go through operations and to live with a relatively unknown disease. People need to become more aware to assist with research
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About CMN Ambassador - Olivia Grace
Our daughter, Olivia Grace, was born with Congenital Melanocytic Nevus (CMN) — a very rare condition that most people have never heard of. From the moment she arrived, our world shifted, and we were introduced to a diagnosis we never expected and a path we never planned for.
CMN is more than a birthmark. It can be linked with Neurocutaneous Melanocytosis (NCM), a condition that is even more rare — and one Olivia Grace was also born with. For her, this has meant neurological risks, oncology teams, MRIs, scans, surgeries, and constant monitoring. It has meant learning a new medical language overnight and living with questions that don’t always have clear answers. It means carrying a quiet, constant fear that exists alongside an even deeper love for her.
By just 9 months old, Olivia Grace has already undergone three brain surgeries, along with countless MRIs, biopsies, scans, blood tests, and lumbar punctures — and the list goes on. No baby should have to endure what she has, yet she faces it all with a strength that amazes us every single day.
There is no cure for this rare disease.
That is why awareness matters so much to us. Please help us spread the word, create understanding, and bring attention to CMN and NCM — so that more research, support, and compassion can follow. If sharing Olivia Grace’s story helps even one family feel less alone, then it is worth it.