CMN Ambassador - Anthony

Nevus Outreach / 2026 A-Team

Sharing my rare to make you aware ❤️

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  • $4,000

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About CMN Ambassador - Anthony

Little Ant was born with Giant Congenital Melanocytic Nevus. (CMN) 

Approximately 1 out of 500,000 babies are born with this condition. It is a genetic mutation, not genetic, where the pigment-producing cells called nevomelanocytes are not evenly distributed. When many nevomelanocytes are clumped together, they can result in moles on the skin because of the higher concentration of melanin (pigment), this is what forms the Nevus. Because of the rarity, spreading awareness is crucial. When complications do arise from CMN there is no known cure. 

CMN is present at birth. When Anthony was born, it was terrifying as we were not prepared for this diagnosis. The doctors had little to no information and were very unsure of what to do. Anthony was born with a large nevus on the majority of his back and was covered from head to toe in smaller birthmarks. He spent lots of time at Children’s Hospital of Philadelphia and visits frequently for skin checks for melanoma. 5 months into our journey we found Nevus Outreach and it has been our guiding light through the last 7 years. Through those years, we have met Nevus families from all over the world, and we are blessed that we don’t have to navigate through this alone. 

Nevus Outreach is supported nearly entirely by donations. There are no medications approved for this condition — we have no pharma dollars coming in. The work we do to support, advocate, and fund research comes out of the pockets of families and friends.

We have spent all of Anthony’s life advocating for him and spreading awareness. We are forever grateful for those who have supported our family and Anthony over the years. Please join us for a kids' class to celebrate Anthony - all proceeds raised during the kids' class will go to Nevus Outreach in honor of Rare Disease Day!

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